**Brand Description: The Organisation for Rare Diseases India (ORDI)**

The Organisation for Rare Diseases India (ORDI) is a pivotal national body dedicated to advocating for individuals with rare diseases across India. Founded to amplify the voices of those impacted by these conditions, ORDI provides critical support and resources for patients and their families. Despite an estimated 443 rare diseases identified in the country, only 10-12 orphan drugs are currently accessible to Indian patients, provided by leading pharmaceutical companies like Sanofi, Takeda, and Novartis through charitable access programs.

ORDI is actively involved in raising public awareness about rare diseases through initiatives such as the annual RaceFor7 marathon, which draws thousands of participants and aims to inform policymakers of existing challenges. The organization collaborates with over 25 registered Patient Advocacy Groups, reaching out to new patients through medical camps and a questionnaire-based screening model. Moreover, ORDI continues to push for the inclusion of more treatable rare diseases in official policy, ensuring that all patients have equitable access to necessary care and resources.