Cornelia España

The Asociación Española del Síndrome de Cornelia de Lange, also known as Asociación Cornelia España, is dedicated to providing invaluable support and resources for individuals and families affected by Cornelia de Lange Syndrome (CdLS). This genetic condition can result in a range of developmental challenges, presenting characteristics that vary in severity from mild to profound. The association focuses on raising awareness, offering workshops, and organizing congresses aimed at fostering education and advocacy.

A significant part of their mission is to promote scientific research on CdLS, utilizing funds to help advance understanding and treatment of the syndrome. The association actively engages with the community through both online platforms and social media, ensuring that families have access to essential information and support.

By collaborating with various partners, Asociación Cornelia España strengthens its outreach efforts, contributing to a more informed society and improving the quality of life for those affected by this rare condition. Join them in their journey to make a difference in the lives of individuals with CdLS and their families.