DEEP
@dee-p.org
DEEP is an international collaborative nonprofit dedicated to improving outcomes for people impacted by developmental and epileptic encephalopathies (DEEs) and other severe neurological impairments (SNIs). We believe meaningful progress happens when caregivers, clinicians, researchers, industry, advocacy organizations, and policymakers work together. By bringing these voices together, we help accelerate innovation, strengthen education, and improve the quality of life for individuals and families living with complex neurological conditions and those that serve them. Our work is guided by four strategic priorities: • Educate & Empower caregivers and clinicians with trusted, accessible education, practical resources, and meaningful support. • Accelerate Research by fostering cross-disease collaboration, elevating lived experience, and helping bridge the gap between families and the scientific community. • Advance Advocacy by amplifying the voices of patients and families to improve systems of care, influence policy, and advance equitable access to treatments, services, and support. • Strengthen Partnership by fostering strategic, cross-sector collaborations among caregivers, clinicians, researchers, advocacy organizations, and industry partners to align efforts, share knowledge, and accelerate progress across the diverse DEE and SNI landscape. DEEP, in collaboration with its various stakeholders, is building a future where every person affected by DEEs or other severe SNIs has access to the knowledge, community, and opportunities they need to thrive.
DEEP's Company Logos
DEEP's Brand Colors
Hex Code
Color name
RGB
HSL
CMYK
#6B429A
Royal Purple
107, 66, 154
268, 40, 43
31, 57, 0, 40
#1A1A1A
Cod Gray
26, 26, 26
0, 0, 10
0, 0, 0, 90
#F0AB51
Sandy brown
240, 171, 81
34, 84, 63
0, 29, 66, 6
About DEEP
DEEP (Developmental Epileptic Encephalopathies Patient Advocacy) is a 501(c)(3) nonprofit that connects and supports people and families affected by rare, severe epilepsies and other serious neurological impairments. Its mission centers on community connections and transformative outcomes, bringing together families, clinicians, researchers, patient advocacy groups, and industry partners to strengthen education, support, research, and advocacy.
DEEP provides a resource center explaining developmental epileptic encephalopathies and severe neurological impairments, along with educational webinars and a blog. Caregiver support includes online support chats, a WhatsApp community, and Dinner on DEEP. The organization also offers a provider directory and opportunities to engage through its Patient Advocacy Collaborative, industry partnerships, volunteer network, and events.
Research initiatives include The Inchstone Project, with results and publications shared through the organization’s website. DEEP also advances policy advocacy and engages with the FDA, including through an Externally Led Patient-Focused Drug Development Meeting. By connecting lived experience with research and advocacy, DEEP helps families find information, support, and pathways to participate in efforts addressing complex conditions.
Brand industry
Health
Company type
Suggest company type
Year founded
Suggest founded year
Company size
Suggest company size
