Detect EBV

DetectEBV is an information and advocacy platform focused on the Epstein-Barr virus (EBV), bringing together patients, healthcare professionals and researchers to improve understanding and recognition of the virus. Its content is organised around four themes: understanding EBV, detecting and monitoring it, living with it, and taking action to raise awareness. The site explains the virus and its infection phases, addresses questions about conditions associated with EBV, and shares research links and other useful resources.

It highlights the importance of diagnosis and monitoring, aiming to reduce medical uncertainty and encourage changes in clinical practice. DetectEBV also offers written and video testimonials from patients, caregivers and researchers, and invites visitors to share their own experiences and expertise. For people seeking support, the platform provides a directory of professionals specialising in EBV and invites qualified experts to join it free of charge.

Through educational materials, community updates and opportunities to participate, DetectEBV seeks to make the realities of the virus more visible and encourage informed discussion about care and support