Duchenne Data Foundation
@duchennedatafoundation.org
Bringing data to life to improve the lives of people with Duchenne and Becker muscular dystrophy. This it the goal of Duchenne Data Foundation
Duchenne Data Foundation's Company Logos
Duchenne Data Foundation's Brand Colors
Hex Code
Color name
RGB
HSL
CMYK
#EE3B33
Pomegranate
238, 59, 51
3, 85, 57
0, 75, 79, 7
#FFFFFF
White
255, 255, 255
0, 0, 100
0, 0, 0, 0
#000000
Black
0, 0, 0
0, 0, 0
0, 0, 0, 100
About Duchenne Data Foundation
Duchenne Data Foundation is a brand dedicated to bringing data to life in order to improve the lives of individuals with Duchenne and Becker muscular dystrophy. Their mission is to connect fragmented DMD/BMD data and make a significant impact on the global community. With a focus on research and development, they connect data to generate new evidence for more efficient and faster therapy development and care.
They also strive to ensure that all people living with dystrophinopathies have access to the latest standards of care and the best quality of life. Through education and training, they empower the global dystrophinopathy community, ensuring that research is patient and family-centered and led. DDF advocates for patients to have control over their own data, recognizing its importance and the impact it can have on improving patient outcomes.
By bringing together all sources of data related to dystrophinopathies, DDF promotes knowledge sharing and innovative approaches to connecting data, ultimately driving positive change in the field
Company type
Nonprofit
Year founded
2015
Company size
2-10 employees
