DupMECP2
@dupmecp2.eu
Le syndrome de duplication du gène MECP2 est une maladie neurogénétique rare et grave. Nos missions sont dédiées au soutien des familles, à l'information sur les avancées scientifiques, à l'accélération des projets de recherche.
DupMECP2's Company Logos
DupMECP2's Brand Colors
Hex Code
Color name
RGB
HSL
CMYK
#BCE8F1
Mint Tulip
188, 232, 241
190, 65, 84
22, 4, 0, 5
#A6D4DE
Aqua Island
166, 212, 222
191, 46, 76
25, 5, 0, 13
#55266C
Jacarta
85, 38, 108
280, 48, 29
21, 65, 0, 58
About DupMECP2
Lasst uns MDS heilen - DupMECP2 is an extraordinary association that was founded exactly one year ago. It all started with Matteo's diagnosis in 2021, after three years of uncertainty and his parents, David and Caroline Covini, fighting relentlessly for answers. The diagnosis revealed a rare disease called MECP2 duplication syndrome, with only 260 cases recorded worldwide.
Driven by love and determination to make a difference for children with MDS, both David and Caroline, who are scientists, embarked on an incredible journey. This journey led them to establish Lasst uns MDS heilen, an association dedicated to accelerating research, providing support, and fostering unity among families facing this challenge. In May 2022, as they witnessed the struggles of parents dealing with rare diseases, they were motivated to make an even greater impact.
Join Lasst uns MDS heilen - DupMECP2 and be part of an inspiring movement to heal MDS and transform lives
Company type
Nonprofit
Year founded
2022
Company size
2-10 employees
