ELA Luxembourg asbl
@ela-asso.lu
ELA est une association de parents et de patients motivés et informés qui unissent leurs efforts contre les leucodystrophies en établissant et en respectant des objectifs clairs : - aider et soutenir les familles concernées par une leucodystrophie, - stimuler le développement de la recherche, - sensibiliser l’opinion publique. - développer son action au niveau international Jean-Paul Friedrich, Président d'ELA Luxembourg asbl s'investit depuis 2006 pour faire connaitre l'association, la maladie et récolter des dons afin notamment, de financer des programmes de recherche. Epaulé par des parrains impliqués venant des milieux sportifs et culturels, il a mis en place plusieurs opérations de grande envergure dont 1 match de gala au stade Josy Barthel, et développe depuis maintenant 3 ans l'opération "Mets Tes Baskets".
ELA Luxembourg asbl's Company Logos
ELA Luxembourg asbl's Brand Colors
Hex Code
Color name
RGB
HSL
CMYK
#E41871
Red Violet
228, 24, 113
334, 81, 49
0, 89, 50, 11
#EE559D
Brilliant Rose
238, 85, 157
332, 82, 63
0, 64, 34, 7
#005368
Blue Stone
0, 83, 104
192, 100, 20
100, 20, 0, 59
About ELA Luxembourg asbl
ELA Luxembourg is a European association dedicated to fighting against Leucodystrophies, a group of genetic disorders affecting the central nervous system. With a focus on research, support, and raising awareness, ELA Luxembourg aims to make a difference in the lives of affected families. The association provides support to families through expert centers, helping them navigate the challenges of the disease. Additionally, ELA Luxembourg actively promotes research efforts to understand and find treatments for Leucodystrophies.
In order to raise awareness, ELA Luxembourg engages in various activities, such as organizing the "Mets Tes Baskets dans l'Entreprise" event, where companies challenge themselves to support the cause. Through their online store, individuals can contribute by purchasing items from the boutique or making a donation. ELA Luxembourg also collaborates with partners and ambassadors who share the same vision of fighting against Leucodystrophies.
By advocating for research, support, and awareness, ELA Luxembourg strives to improve the lives of those affected by Leucodystrophies and ultimately find a cure.
Brand industry
Business and Consumer Services
Company type
Nonprofit
Year founded
2006
Company size
2-10 employees
