é a Esclerose Tuberosa
@esclerosetuberosa.org.pt
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#052C65
Deep Sapphire
5, 44, 101
216, 91, 21
95, 56, 0, 60
#A4CE4C
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164, 206, 76
79, 57, 55
20, 0, 63, 19
#FFFFFF
White
255, 255, 255
0, 0, 100
0, 0, 0, 0
About é a Esclerose Tuberosa
The Associação de Esclerose Tuberosa em Portugal (AETN) is a Portuguese association supporting people affected by tuberous sclerosis and their families and caregivers. Founded on 11 July 2011 by parents and relatives, it aims to help improve the quality of life of people living with the condition. AETN shares information about tuberous sclerosis, including its genetics, the organs it can affect, and neurological and physical complications.
Its resources also cover clinical guidance, available treatments, and advice for monitoring and managing the condition in daily life. The association helps visitors look for healthcare professionals with expertise in tuberous sclerosis and provides information about patient passports and state and legal support. People can become members, volunteer, follow news and events, or contribute through donations and Portuguese tax designation.
AETN states that contributions help sustain support, research, and education related to the condition. Through these services and resources, the association brings together patients, families, caregivers, healthcare professionals, partners, and supporters in Portugal to strengthen understanding and support for the tuberous sclerosis community
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