FLaNET Carcinoid Community

FLaNET: Neuroendocrine Cancer Community is a patient-led nonprofit helping people with neuroendocrine tumors (NETs) and their loved ones navigate diagnosis, treatment, and life beyond diagnosis. Founded by patients, caregivers, and clinicians, the organization connects lived experience with medical expertise, making complex information easier to understand and helping families find answers to everyday questions.

FLaNET offers clear educational resources, patient stories, articles, videos, and events, including webinars and a webinar library. Patients can explore information about their diagnosis and possible next steps, while caregivers can access practical guidance, tools, and community support. For physicians, FLaNET provides evidence-based resources and specialist directories intended to support referrals and care outcomes. The nonprofit also works with partners to advance education, awareness, and better care.

With a focus on patient-first guidance, compassionate communication, trusted expertise, and connected care, FLaNET brings patients, families, clinicians, and advocates together. Its resources and community are designed to reduce isolation, encourage informed conversations, and support awareness and early detection.