Gehn mit HSP

Ge(h)n mit HSP is an information and peer-support community focused on hereditary spastic paraplegia (HSP). Its website brings together a public discussion forum and resources for people affected by the condition, their families, and others seeking reliable, practical information. Members exchange experiences and questions about HSP diagnosis, symptoms, medications, mobility aids, therapies, rehabilitation, specialist appointments, and current research.

Dedicated sections address children and young people, genetics, social support and benefits, relationships, accessible travel, regional groups, events, videos, and everyday life. The forum also provides guidance on HSP clinics, frequently asked questions, and lists of doctors and physiotherapists, alongside instructions for using the site and its search tools. A separate area is devoted to the Förderverein für HSP-Forschung e.

V. and its research-related activities. The community offers opportunities to connect with others, share information, and discuss practical challenges, while its notices explain site policies and operating guidance.

Users can browse discussions or register to participate; the site also describes ways online shopping can support HSP research