Glykogenose Deutschland e.V. is a German self-help association for people living with glycogen storage diseases, their families, and anyone seeking information about these rare inherited conditions. Because glycogenoses involve disorders of glycogen metabolism and can vary widely in symptoms and course, the association provides information on multiple types, including Pompe, von Gierke, Cori, Andersen, McArdle, Hers, Tarui, and others.

The organization helps people affected connect with others in similar situations, share personal experiences, and find support through its network. Its website offers educational resources, news, event information, downloads, and contact details for board members, coordinators, and other relevant contacts. The association also represents the interests of people with glycogenoses, works with national umbrella organizations, participates in international activities, and serves as a point of contact for professional communities.

People can support its work by making a donation or becoming a member. Glykogenose Deutschland e.V. is connected with organizations including ACHSE, the German Society for Muscle Disorders, and the International Pompe Association.