Unclaimed brand
Als patiëntenorganisatie verbinden we mensen en kennis met elkaar; ouders, broers- en zussen, artsen en onderzoekers. Wij willen de belangen van mensen met een GRIN mutatie in Nederland en België behartigen.
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Hex Code
Color name
RGB
HSL
CMYK
#3186BA
Boston Blue
49, 134, 186
203, 58, 46
74, 28, 0, 27
#3A3A3A
Mine Shaft
58, 58, 58
0, 0, 23
0, 0, 0, 77
#85C3E9
Seagull
133, 195, 233
203, 69, 72
43, 16, 0, 9
Stichting GRINsyndroom is a patient organization supporting people with GRIN or GRIA gene mutations and their families in the Netherlands and Belgium. It brings together parents, siblings, healthcare professionals and researchers to share knowledge and represent the interests of the affected community. The foundation’s website explains the genes and conditions, including possible causes, symptoms and differences between genetic variants.
It also offers practical information for families navigating diagnosis, genetic reports, education, parenting, adolescence and the transition to adulthood. Visitors can find advice for parents and professionals, personal stories, research updates and reports from conferences. The organization helps connect families with one another and with relevant experts, including the GRIN expertise centre, and provides information about patient registration and functional analysis.
A newsletter and contact options help people stay informed and seek guidance. GRINsyndroom emphasizes that experiences and support needs vary widely, and encourages families and professionals to share knowledge about these rare conditions. Its work aims to strengthen understanding, support and collaboration around GRIN and GRIA mutations
Brand industry
Health
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