HSP-Info

The Tom Wahlig Foundation is a German nonprofit dedicated to hereditary spastic paraplegia (HSP), a rare genetic condition that progressively affects nerve pathways in the spinal cord and can make walking increasingly difficult. Founded in 1998, the foundation describes itself as the world’s first institution focused on advancing HSP research and raising the condition’s profile among medical professionals, researchers and the public.

The foundation supports research through project funding, scholarships and awards, including the Adolf Strümpell Prize and poster prizes for emerging scientists. It also helps connect researchers and people affected by HSP through international symposia, workshops, family and community gatherings, and other events. Its website provides information about HSP, genetics, treatment, rehabilitation and research, alongside interviews, news and resources for affected individuals.

Through public campaigns, fundraising activities and partnerships, the foundation works to increase awareness and encourage support for research. Its work is funded by donations, which help sustain its research initiatives, educational resources and community-building efforts.