IPWSO is an international non-profit organization that is dedicated to supporting individuals, families, and professionals affected by Prader-Willi Syndrome (PWS). With a focus on education, advocacy, and research, IPWSO provides invaluable resources and services to the global PWS community. For families, IPWSO offers a wealth of information and guides on various aspects of living with PWS, including new parents, siblings, education, transition, diet, behavior, mental health, physical health, exercise, and adult life.

They also provide support for conferences and workshops, individual grants, and international advocacy. Medical professionals can access important medical facts, consensus documents, research papers, clinical research, and common medical issues related to PWS. IPWSO also offers guidelines for professional caregivers in residential care and provides caregiver ECHO® videos, advice services, and translated guides.

Furthermore, IPWSO assists with free diagnosis, coordinates the Project ECHO® program, and offers support for starting PWS organizations and volunteer opportunities. By joining IPWSO, individuals and organizations become part of a global network working towards improving the quality of life for individuals with PWS and their families