Jackson Casey SUDEP Awareness

The Jackson Casey SUDEP Awareness Foundation, Inc. (JCSAF) is an Idaho-based nonprofit dedicated to raising awareness of epilepsy and sudden unexpected death in epilepsy (SUDEP). Inspired by the Jackson Casey story, the foundation works to educate people with epilepsy, their families, and the wider community about SUDEP risks and ways to support safety. Its efforts include educational materials and programs for patients, teachers, and communities, as well as continuing education, advocacy for medical transparency, and a pilot student ambassador program. JCSAF also hosts community epilepsy-awareness events and shares personal stories to encourage understanding and involvement.

The foundation directs funds toward initiatives intended to help save lives, including access to non-invasive seizure alerting systems for epilepsy patients in Idaho. Through partnerships, it helps connect qualifying Idaho residents with seizure alert devices and may offer financial aid for eligible patients seeking neurofeedback services. JCSAF invites people to participate through donations, sponsorships, and events. Its website provides information about SUDEP, learning resources, support for communities, frequently asked questions, and ways to get involved.