jmda.or.jp

The Japan Muscular Dystrophy Association (JMDA) is a nationwide welfare organization established to support people living with muscular dystrophy and their families and to promote their well-being. With branches across Japan’s prefectures, JMDA works to connect individuals and provide information, guidance, and opportunities for support. Its activities include peer counseling and the registration and management of medical information about neuromuscular diseases. The association also shares educational resources on muscular dystrophy, disease research, specialist hospitals, relevant laws, rehabilitation, and practical approaches to daily living, including home adaptations and assistive devices.

JMDA offers medical consultations by telephone to members and non-members, as well as email consultations for members. People newly diagnosed can find introductory guidance, while membership provides access to specialized consultation and timely information about muscular dystrophy. The website also publishes announcements and research updates, with some medical news reserved for members. JMDA invites donations to support people affected by muscular dystrophy; contributions can be made by credit card.