Kinderdemenz-Schweiz

Stiftung Kinderdemenz Schweiz is a Swiss foundation established to support families whose children are affected by neuronal ceroid lipofuscinosis (NCL), also known as childhood dementia. The organisation was founded by people connected to families living with the condition and focuses on three aims: helping affected families in Switzerland, supporting research into NCL, and raising public awareness.

NCL is described by the foundation as a poorly researched, incurable metabolic disease that progresses over time. It can cause blindness, epilepsy, and the gradual loss of cognitive and motor abilities, and is associated with an early death. The foundation invites parents, relatives, friends, and other people connected to an affected child to get in touch. It also welcomes enquiries from anyone interested in supporting its work.

Based in Zug, Switzerland, Stiftung Kinderdemenz Schweiz provides a point of contact for families and supporters and works toward a future without childhood dementia. Its website offers information about the foundation, ways to provide support, press coverage, partnerships, and contact details.