Lysosomal&Rare Disorders Research&Treatment Center
@ldrtc.com
#LDRTC is a #NonprofitOrganization with a vision to provide high quality care for patients and families with #LysosomalStorageDisorders and other #RareDiseases
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#17BCBF
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23, 188, 191
181, 79, 42
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15, 15, 15
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0, 0, 0, 94
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255, 255, 255
0, 0, 100
0, 0, 0, 0
About Lysosomal&Rare Disorders Research&Treatment Center
The Lysosomal Center is a Northern Virginia-based organization focused on care and research for people affected by lysosomal disorders. With more than 20 years of experience in the field, it combines individualized patient care with translational research intended to improve treatments and support better health outcomes. Its Fairfax offices provide infusion services in a comfortable, supportive setting, alongside genetic evaluation and patient support.
The center addresses disorders including Pompe disease, Gaucher disease, Niemann-Pick disease and type C, Fabry disease, and mucopolysaccharidosis (MPS). Patients and families can request appointments and access information about treatment options and support. The organization also conducts clinical trials and current research, aiming to evaluate potential therapies and translate research findings into practical care.
Its research and education resources include publications, lectures, webinars, continuing medical education, and patient meetings. Led by specialists including Ozlem Goker-Alpan, MD, and Margarita Ivanova, PhD, the center connects clinical services, scientific investigation, and education to serve people living with rare lysosomal conditions
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