littlelegsbigheartfoundation.org

The Little Legs Big Heart Foundation is a community-focused nonprofit dedicated to empowering people with skeletal dysplasia and supporting their families. Its mission is to foster inclusion, acceptance, resilience, and the belief that everyone can live life beyond height. Through community outreach and educational resources, the foundation raises awareness and helps individuals and families make informed decisions about treatment, daily living adaptations, and advocacy.

The foundation hosts an annual skeletal dysplasia conference, bringing together patients, families, and medical professionals for lectures, family-led discussions, and community activities. It also supports research intended to improve treatments and patient outcomes, and promotes global awareness through outreach and collaboration. Its Emotional Support Network offers a community-driven mental and emotional health support system for people with skeletal dysplasia and their families. A nationwide directory of pediatric and adult specialists is planned.

People can get involved through volunteering, sponsorship, donations, and awareness efforts. The foundation also shares its founder Kristen’s memoir about growing up with achondroplasia, resilience, and self-acceptance.