Living with TGCT
@livingwithtgct.eu
Learn about TGCT (tenosynovial giant cell tumor) / PVNS in patient-friendly language. Find support, guidance, and real patient stories to help you live with the disease.
Living with TGCT's Company Logos
Living with TGCT's Brand Colors
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#5B7ABD
Steel Blue
91, 122, 189
221, 43, 55
52, 35, 0, 26
#AE2241
Maroon Flush
174, 34, 65
347, 67, 41
0, 80, 63, 32
#D59952
Di Serria
213, 153, 82
33, 61, 58
0, 28, 62, 16
About Living with TGCT
Deciphera Pharmaceuticals’ European TGCT/PVNS patient website is an educational resource for people living with tenosynovial giant cell tumor (TGCT), their caregivers, and the general public. It explains that TGCT, also known as pigmented villonodular synovitis (PVNS), is a rare, non-malignant tumor that affects joints and sometimes nearby areas, and can significantly affect daily life. The site offers patient-friendly information about the condition, including its symptoms, diagnosis, treatment, and approaches to managing symptoms.
It also provides practical support resources, such as links to patient organizations and specialized centers, along with a glossary and links to further information. Visitors can read personal stories and watch a video featuring Ramon, who shares his experience of living with TGCT. The website is intended for audiences in Europe and is designed to support understanding rather than promote a specific product, treatment, or service.
Its content does not replace professional medical advice; visitors are encouraged to consult healthcare providers about medical concerns
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