Lymphatic Malformation Alliance

The Lymphatic Malformations Alliance, formerly known as LGDA, is a community-focused organization supporting people affected by isolated lymphatic malformations and complex lymphatic anomalies. It brings patients, families, caregivers, clinicians, and researchers together to improve understanding, expand access to care, and advance research, guided by the belief that no one should face a rare condition alone.

The Alliance provides clear, accessible information about lymphatic conditions, including symptoms, diagnosis, treatments, complications, prenatal care, and daily life. Its resources include patient guides, learning videos, frequently asked questions, stories, and practical guidance for families and healthcare professionals. Community programs help people connect through online meet-ups and one-to-one support, while the organization also helps users find experienced clinicians and vascular anomaly centers.

For the research community, the Alliance shares scientific updates, clinical trial information, research papers, and training resources, and offers grants and opportunities to participate in its research network and patient registry. Through education, connection, and research initiatives, it works to strengthen care and accelerate progress for the lymphatic malformations community.