Long Covid SOS is a brand that was established in June 2020, during the early months of the pandemic. This brand is unique because it is entirely staffed by volunteers who have firsthand experience with Long Covid. Long Covid SOS is now registered with the Charity Commission and is guided by a board of trustees.

The main focus of Long Covid SOS is to generate awareness about the condition through social media and press campaigns. They work closely with prominent organizations such as the NHS, RCGP, Dept for Health and Social Care, NICE, ONS, NIHR, and the WHO. Additionally, they collaborate with researchers to advance their mission of recognizing, researching, and rehabilitating individuals with Long Covid.

Long Covid SOS is also actively involved in advocacy efforts, providing an informed perspective to national and international organizations, as well as the research community. They aim to amplify the voices of those affected by Long Covid and make a lasting impact on the lives of individuals struggling with this debilitating illness. Through their dedication and commitment, Long Covid SOS is making a significant difference in the lives of people with Long Covid and their loved ones