Meine Genomdaten
@meine-genomdaten.de
Vielleicht haben Sie schon über einen genetischen Test nachgedacht oder wurden gefragt, ob Ihre Daten für die Forschung genutzt werden dürfen. Hier erfahren Sie verständlich, was genetische Daten sind, welche Rolle sie in der Medizin spielen und was es bedeutet, sie zu teilen.
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Meine Genomdaten's Brand Colors
Hex Code
Color name
RGB
HSL
CMYK
#C93B79
Medium Red Violet
201, 59, 121
334, 57, 51
0, 71, 40, 21
#000000
Black
0, 0, 0
0, 0, 0
0, 0, 0, 100
#D8975A
Di Serria
216, 151, 90
29, 62, 60
0, 30, 58, 15
About Meine Genomdaten
Meine Genomdaten. Teilen und Helfen. is an information portal for patients and anyone interested in genomics, genetic data and medical research.
It explains in accessible language what genetic data are, how they can support healthcare, and what it means to share them voluntarily for research. The portal presents genomics in medicine, including how genetic information can help improve diagnoses and tailor treatment, with topics such as cancer and rare diseases. It also introduces genomic research, describing what researchers study and how genetic information contributes to medical knowledge.
For people considering sharing their data, the site provides guidance on consent, pseudonymisation, secure storage, research access and individual rights, as well as information about family-related questions. Its educational resources include explanations of genomic concepts, a glossary and podcasts featuring expert perspectives. The portal highlights collaboration between patient care and research, and the potential for shared data to contribute to better understanding, prevention and treatment of disease.
It also offers information about the initiative behind the site and ways to provide feedback
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Health
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