Miastenią

Gioconda is the Polish Association of People with Myasthenia Gravis, a community of patients, families, and supporters focused on improving life for people affected by this rare, unpredictable neuromuscular disease. The association works to promote timely diagnosis, access to modern treatment, reliable information, and greater recognition of the challenges associated with an often invisible disability. It represents patients in discussions with public institutions and advocates for better standards of care and reimbursement of innovative medicines.

Gioconda provides educational resources about myasthenia, including articles, reports, publications, videos, podcasts, and practical information on diagnosis, treatment, specialists, and medicines that may be unsuitable for patients. Its website also offers patient stories, a discussion forum, and opportunities to connect with others who understand the condition. The association organizes educational events and projects, and supports emotional wellbeing through meetings, workshops, and access to psychological support. It also shares information about doctors and treatment centres and encourages cooperation among patients and healthcare professionals.