Osteogenesis Imperfecta Federation Europe (OIFE) is a leading umbrella association that supports organizations working with the rare disease Osteogenesis Imperfecta (OI), commonly known as brittle bone disease. Since its inception in 1993, OIFE has been committed to serving the OI community and driving positive change. As a non-profit organization based in the Netherlands, OIFE is registered as a charity.

With a network of 39 member organizations and over 500,000 people affected by OI worldwide, OIFE plays a crucial role in advocating for the needs of individuals with OI. Their mission is to enhance the lives of those living with OI by fostering medical advancements, promoting research and development, and providing a platform for patient involvement and peer support. OIFE offers a wide range of services and resources, such as informative events, the IMPACT survey, research projects, and annual reports.

Additionally, they facilitate social networking, publish the OIFE Magazine, and feature a comprehensive photo gallery. OIFE also provides support for medical professionals, researchers, and companies interested in contributing to OI research and treatment. To get involved with OIFE, you can become a member, make a donation, or volunteer your time.

By joining OIFE, you join a dedicated community working towards improving the lives of those affected by OI