PH-Europe

PH-Europe is an independent, commercial-free advocacy group and European support network for people affected by Primary Hyperoxaluria (PH). Its community is powered by patients, parents, medical professionals, translators, artists, IT specialists, and other supporters, bringing together lived experience and professional knowledge to help families navigate the condition. The network connects people with local contacts across Europe and invites patients and supporters to become members and receive updates and announcements.

PH-Europe provides information about PH, resources for people who are newly diagnosed, and guidance on research and treatment developments. Its website also features news and events, including advocacy on issues affecting access to potential therapies. For children affected by PH, the organisation offers a dedicated corner with resources, videos, and books. Visitors can learn about the condition, explore research updates, find relevant support materials, and get involved with the network. Through its information, community connections, and patient advocacy, PH-Europe helps raise awareness and support people and families living with Primary Hyperoxaluria.