Piel de Mariposa
@pieldemariposa.es
https://www.youtube.com/watch?v=uNhrz1QS9_Yhttps://youtube.com/shorts/fLcWWkiKHj4 La Piel de Mariposa es una enfermedad RARA GENÉTICA INCURABLE DOLOROSA Imagina tener miedo de hacer daño a tu bebé con un simple abrazo. Imagina que su piel fuera tan frágil como las alas de una mariposa, y que acciones tan cotidianas como comer o caminar le causaran heridas. Imagina que en el hospital […]
Piel de Mariposa's Company Logos
Piel de Mariposa's Brand Colors
Hex Code
Color name
RGB
HSL
CMYK
#057FB5
Lochmara
5, 127, 181
198, 95, 36
97, 30, 0, 29
#FFFFFF
White
255, 255, 255
0, 0, 100
0, 0, 0, 0
#61A229
Olive Drab
97, 162, 41
92, 60, 40
40, 0, 75, 36
About Piel de Mariposa
Piel de Mariposa is a brand that focuses on raising awareness and supporting families affected by a rare, genetic, incurable, and painful condition called Butterfly Skin (EB). Imagine the fear of hurting your baby with a simple hug or everyday activities like eating and walking causing wounds due to their fragile skin. Piel de Mariposa understands that these are not imagined scenarios for these families; they are the daily reality they live with.
Piel de Mariposa works tirelessly to alleviate the pain by sensitizing the public, advocating for better quality of life, providing support to families, and promoting research. Their team of professionals, including nurses, psychologists, and social workers, supports over 300 families through the entire journey, from birth to end of life. Additionally, they coordinate and co-finance research projects and collaborate with international organizations.
By supporting Piel de Mariposa, you can make a difference in the lives of these families and contribute to improving their day-to-day challenges
