PKU Care

PKU Care is a digital platform designed to help people living with phenylketonuria (PKU), their families and care teams manage everyday information in one place. Created from the experience of a PKU family, the service brings together nutrition tracking, health records and shared support to make coordination easier.

Through its app, users can document foods and meals, record phenylalanine intake, track amino acid schedules and log blood values such as Phe and tyrosine. The platform also supports health notes, including symptoms and relevant events, and displays changes over time in charts. Users can prepare records for appointments and export reports as PDF or CSV files. Family members, caregivers and professionals can be included through roles and access permissions, while a community space enables users to share experiences and questions. The app is available in German and English, with features and profile limits depending on the selected plan. PKU Care supports documentation and collaboration; it does not replace medical advice or treatment.