PSC PARTNERS SEEKING A CURE

PSC Partners Seeking a Cure is a nonprofit organization founded in 2005 to improve the lives of people affected by primary sclerosing cholangitis (PSC), a rare, chronic disease that damages the bile ducts and can lead to liver failure. It brings together patients, caregivers, clinicians, and researchers in the United States and internationally, with a mission focused on support, education, advocacy, research, and finding a cure.

The organization offers practical resources for people who are newly diagnosed, children and teens, caregivers, and those navigating life with PSC, liver transplantation, or organ donation. Its community programs include conferences, regional summits, Connected-to-Care events, and opportunities to connect with others who understand the condition.

PSC Partners also advances patient-centered research through its patient registry, WIND-PSC real-world data initiative, clinical trial information, research grants, and advisory committees. People can contribute as volunteers, mentors, advocates, or donors. The organization shares research updates, educational materials, patient stories, newsletters, videos, and webinars to help its community stay informed and involved.