« PSP France

PSP France is a French association dedicated to supporting people affected by progressive supranuclear palsy (PSP) and corticobasal degeneration (DCB), along with their families and caregivers. Founded in 1996, it is recognized as serving the public interest and brings together members, healthcare professionals, partner organizations, and donors. The association helps families navigate the challenges of these rare neurodegenerative conditions through information, telephone support, local meetings, and opportunities to connect with others facing similar experiences.

Its website provides practical resources on diagnosis, treatment and care, daily life, available assistance, and coping as the conditions progress. PSP France also works to inform families, doctors, and other health professionals about the diseases, while promoting knowledge and research into their causes and potential treatments. Its research resources include information on clinical trials and scientific and medical publications.

To advance its work, the association organizes fundraising and public events and develops partnerships. Through regional groups and community activities, PSP France offers patients and loved ones ways to seek support, share information, and take part in collective action