Rare Epilepsy Network
@rareepilepsynetwork.org
The Rare Epilepsy Network (REN)'s mission is to work with urgency to collaboratively improve outcomes of rare epilepsy patients and families by fostering patient-focused research and advocacy
Rare Epilepsy Network's Company Logos
Rare Epilepsy Network's Brand Colors
Hex Code
Color name
RGB
HSL
CMYK
#6B8887
Juniper
107, 136, 135
178, 12, 48
21, 0, 1, 47
#FCD29D
Cherokee
252, 210, 157
33, 94, 80
0, 17, 38, 1
#6F2700
Cedar Wood Finish
111, 39, 0
21, 100, 22
0, 65, 100, 56
About Rare Epilepsy Network
Rare Epilepsy Network (REN) is a volunteer network comprised of rare epilepsy organizations and broad epilepsy stakeholders dedicated to improving the lives of individuals affected by rare epilepsies. Established in 2013, REN was initially funded by a grant from the Patient-Centered Outcomes Research Institute (PCORI) and managed by the Epilepsy Foundation (EF). Over the years, REN has grown to include 32 organizations and has launched a groundbreaking rare epilepsy registry, encompassing 41 diseases and involving 1,500 patients.
After the PCORI grant ended in 2019, REN expanded its scope, undertaking multiple projects and fostering greater transparency in its mission and composition. REN's goal is to promote patient-centered outcomes research, facilitate successful clinical trials, and enhance representation of rare epilepsies in funding, research, advocacy, and drug development. With a focus on collaboration, REN aims to improve patient-defined outcomes through rigorous scientific inquiry.
Join REN and be part of a collective effort to advance the well-being of rare epilepsy patients and their families
Company type
Nonprofit
Year founded
2013
Company size
2-10 employees
