Raremark Foundation

Raremark Foundation is a nonprofit organization based in Kampala, Uganda, dedicated to improving the lives of people living with or affected by sickle cell disease. It works to raise awareness, share reliable health information, and build a supportive community of patients, caregivers, and advocates. Its educational content is evidence-based and informed by real-life experiences, addressing topics such as pain episodes, mental health, relationships, and everyday wellbeing with an emphasis on empathy and inclusion.

The Foundation’s key initiatives include the Know Your Type Program, which supports genotype screening and informed health and family-planning decisions; the Hope For Warriors Fund, which assists people living with sickle cell disease, including through support for hip replacement surgeries; and HEAL (Health Education and Aid for Life), a health-systems initiative focused on improving care. The organization also shares news, personal stories, and discussions through its Sick Conversations podcast, featuring the experiences of people affected by rare diseases.