rett-cz.com

Rett Community, z.s. is a self-help association of parents and friends of girls with Rett syndrome, based in Hostivice, Czech Republic. The organization offers support and practical information to families whose daughters live with this rare, congenital neurological condition, which primarily affects girls and can cause severe, multiple disabilities. Its work is grounded in the experiences of families and the everyday needs of the girls they care for.

Through its website, Rett Community shares information about Rett syndrome, treatment, daily care challenges, education and communication, as well as parents’ personal experiences. It introduces the girls and their interests, helping visitors understand their individual personalities and ways of communicating. The association also provides guidance on how to support its work, including making a financial contribution, volunteering or using the GIVT shopping-support option. News, planned activities and a newsletter help families and supporters stay connected. Rett Community’s focus is on fostering mutual understanding and offering families a supportive community as they navigate life with Rett syndrome.