Rett Syndroom NL
@rett.nl
Rett syndroom is een zeldzame neurologische ontwikkelingsstoornis die in de meeste gevallen veroorzaakt wordt door een spontane mutatie in het gen MECP2, dat codeert voor Methyl-CpG-bindend Proteine 2. Het komt bij meisjes voor in ongeveer 1 op 10 – 12.000 geboortes en is bij jongens nog veel zeldzamer. Het is beschreven bij alle rassen en etnische groepen. In Nederland zijn op dit moment ruim 250 meisjes met het Rett syndroom bekend.
Rett Syndroom NL's Company Logos
Rett Syndroom NL's Brand Colors
Hex Code
Color name
RGB
HSL
CMYK
#00ADE5
Cerulean
0, 173, 229
195, 100, 45
100, 24, 0, 10
#5BC0DE
Viking
91, 192, 222
194, 66, 61
59, 14, 0, 13
#084298
Congress Blue
8, 66, 152
216, 90, 31
95, 57, 0, 40
About Rett Syndroom NL
The Dutch Rett Syndrome Association represents individuals with Rett syndrome in the Netherlands. With over 250 known cases in the country, the association offers support and information to those affected by this rare neurological disorder. Their website provides resources on Rett syndrome, including diagnosis, symptoms, development, and treatment options.
They also conduct research, host events like family days and symposia, and facilitate networks for professionals in fields like physiotherapy and speech therapy. The association publishes a biannual Rett magazine featuring personal stories, professional insights, and updates on the latest research and treatments. By donating to support their work, you can contribute to advancing treatment and finding a cure for Rett syndrome while also receiving informative publications.
Join the Dutch Rett Syndrome Association today to be part of their mission
