SarkNos

SarkNos is an Italian patient association established by patients and doctors to connect and support people affected by soft-tissue sarcomas. The organization works to strengthen a network for patients and families, while promoting greater awareness, informed care, research, and specialist education. Its website provides accessible information about sarcomas, including what they are, how they may present, how they are identified and treated, and where patients can seek care.

SarkNos also develops projects and partnerships, organizes public events, and shares news, tutorials, and further resources. Its activities include initiatives that bring together healthcare professionals, institutions, and patient groups to encourage earlier recognition and appropriate diagnostic pathways. The association supports professional training in sarcoma care and research, including postgraduate education for young specialists. Patients and supporters can contribute by donating, becoming members, or taking part in fundraising and awareness events such as the annual SarkRace. Through these efforts, SarkNos seeks to turn connection and shared knowledge into practical support for people facing sarcoma and their families.