Sask Rett

The Saskatchewan Rett Syndrome Association, also known as Sask Rett Syndrome Association, is a nonprofit organization supporting families across Saskatchewan affected by Rett syndrome, a rare genetic neurological disorder. Its focus is building a connected community where families can share experiences, practical advice, and emotional support as they navigate care. The association helps families stay informed about evolving research and treatments, including by sponsoring one or two families each year to attend national or international Rett syndrome conferences and share useful insights with the community.

It also raises public awareness and contributes to medical research, including support for Canadian researchers through the Hope Fund started by ORSA. Donations help advance research into treatments and provide essential support for families. Membership is welcomed but not required for families seeking information or assistance; the association invites people to get in touch after a diagnosis.

Through communication, reliable resources, conference participation, fundraising, and peer connection, the organization aims to make the journey less isolating and help Saskatchewan families access relevant knowledge and support