Silver Russell Syndrome

The Silver Russell Syndrome Global Alliance is an international network of patient-support organizations and medical specialists working to improve understanding and care for people affected by Silver Russell Syndrome (SRS), also known as Russell Silver Syndrome. Its mission is to promote consistent, accessible information on the condition’s clinical and molecular diagnosis and treatment management, and to connect families, patients, caregivers, and health professionals with support in their regions.

Through its website, the Alliance shares information about SRS, including its characteristics, diagnosis, and management. It provides resources for different audiences, such as the international consensus statement on diagnosis and management, a shorter highlights and summary version for patients and families, and related documents and practical information. The summary is available in several languages. The Alliance also supports networking and information exchange among countries, helps people find local support organizations, and invites groups to join its network. Its resources are intended to inform, not replace, consultation with a physician.