SLC6A1-Spain

SLC6A1-Spain, also known as Siempre Luchando Contigo (“Always fighting by your side”), is a Spanish nonprofit association founded by families and people affected by SLC6A1. Since 2023, it has worked to improve the lives of people with this rare genetic neurological disorder by advancing research, supporting families and raising public awareness.

The association focuses on three connected areas. It promotes scientific knowledge about the SLC6A1 gene and supports research into potential treatments and therapies. It connects families, shares experiences and provides guidance, including support for people who have recently received a diagnosis. It also works to bring greater understanding of SLC6A1 to healthcare professionals, institutions and the wider public.

SLC6A1-Spain offers accessible information about the condition, shares stories from affected families and organizes events. People can support its work through one-time donations or ongoing membership; contributions help fund its research, family support and awareness efforts. The association also makes its founding charter and statutes available, reflecting its commitment to accountability.