SMA Magyarország Alapítvány

SMA Magyarország Alapítvány is a Hungarian foundation dedicated to supporting people affected by spinal muscular atrophy (SMA) and their families. Guided by the message “Together against muscle wasting,” it provides accessible information and practical resources to help people understand the condition and navigate care.

The foundation’s website covers diagnosis and first steps, SMA treatment, ongoing care, rehabilitation, orthopaedic services, nutrition, infection prevention and respiratory therapy. Its educational materials include care guides, a health visitor information sheet, guidance for parents and resources about Spinraza treatment. A question-and-answer forum invites visitors to submit common or individual questions, while articles and updates share information about SMA care and developments.

The foundation also offers video and recorded online content, including webinars, workshops and conference presentations, as well as a home physiotherapy video series. Visitors can find links to hospitals, specialist institutions and other useful resources, and access a patient database registration form. The organisation welcomes donations to support its work and shares news through its website and newsletter.