Srdíčkáři

Srdíčkáři is a Czech association and information community for parents of children with congenital heart defects, including families whose child is diagnosed before or after birth. It was founded to help parents navigate the emotional and practical challenges of a heart condition, hospitalization, surgery and the stages that follow. The organization connects families with others who understand their experiences, offering opportunities to seek peer support, share stories and find useful information and links.

Its website provides resources on congenital heart defects, family experiences and the Children’s Cardiology Centre at Motol, alongside articles, media and a podcast. Srdíčkáři also describes how it helps families and promotes opportunities such as spa stays, social support contributions, sports activities and travel-related information. Members and supporters can learn about joining, events and ways to contribute. In cooperation with BeCharity, the association has also shared an offer to purchase digital medical aids for children with heart conditions. Overall, Srdíčkáři focuses on community, practical guidance and mutual support for families affected by childhood heart disease.