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2004 hatte ich eine postvirale Gehirn- und Hirnhautentzündung durch das EBV-Virus, hatte eine Nahtoderfahrung und lag das erste Mal im Sterben. Dieses Prozedere wiederholte sich mehrfach, mein Körper suchte sich über die Dauer neue Wirkungsfelder und entwickelte eine bunte Palette an Symptomen. Zwischenzeitlich habe ich die Diagnose ME/CFS. Von Sylvia Furmaniak
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#A4BA39
Sushi
164, 186, 57
70, 53, 48
12, 0, 69, 27
#93A806
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147, 168, 6
68, 93, 34
13, 0, 96, 34
#85C5ED
Seagull
133, 197, 237
203, 74, 73
44, 17, 0, 7
Sylvia Furmaniak is a German author who shares her experiences of serious illness, near-death experiences and life with ME/CFS. After a post-infectious meningoencephalitis in 2004, she experienced two near-death episodes; in 2019, she again came close to dying. Her life now takes place largely while lying down, and her work reflects on how to live with disability in a way that remains meaningful, courageous, gentle and authentic.
Through her book, Furmaniak opens up about her most personal experiences, speaking on behalf of people who may be unable to express what they are going through. Her website introduces the book and provides information on purchasing it, alongside biographical details, appearances and related media. Visitors can also find an interview with Thanatos TV, a conversation on the Fasynation podcast about meaningful life with ME/CFS, and articles and features from other publications. Furmaniak’s public work brings together personal testimony, reflections on mortality and an invitation to value life and live it with freedom and fullness, even amid profound limitations.
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