TSC Sverige

TSC Sverige is the Swedish association for people affected by Tuberous Sclerosis Complex (TSC) and their families. Founded in 1991 at the initiative of parents, the association aims to make everyday life easier by bringing people together, sharing knowledge and helping families connect with others in similar circumstances.

The website provides information about TSC, the association’s work, its board and bylaws, regional contacts, and national multidisciplinary TSC expert teams. Members can also read the association’s newsletter and find reports from international meetings and research conferences. Family activities are an important part of its work: the association organises gatherings and summer camps where families can share experiences, build relationships and enjoy time together. It also hosts annual meeting weekends and events focused on TSC, including opportunities for healthcare professionals to learn from experts. TSC Sverige offers a community and information resource for families, members and professionals interested in the condition, and invites people to join and take part in its activities.