Viljem Julijan Association for Children with Rare Diseases
@viljemjulijan-cure-for-rare-diseases.com
Cockayne syndrome type B is a very rare and complex genetic disorder that affects multiple organs systems and has a fatal outcome.
Viljem Julijan Association for Children with Rare Diseases's Company Logos
Viljem Julijan Association for Children with Rare Diseases's Brand Colors
Hex Code
Color name
RGB
HSL
CMYK
#1172C1
Denim
17, 114, 193
207, 84, 41
91, 41, 0, 24
#A6E1EC
Blizzard Blue
166, 225, 236
189, 65, 79
30, 5, 0, 7
#845F19
Bull Shot
132, 95, 25
39, 68, 31
0, 28, 81, 48
About Viljem Julijan Association for Children with Rare Diseases
Viljem Julijan Association for Children with Rare Diseases is a non-profit charitable organization based in Slovenia, European Union. Established in 2018 by Gregor Bezenšek (musician SoulGreg Artist) and his wife Nina, the association honors the memory of their son, Viljem Julijan, who bravely battled a rare genetic disease. This organization serves as a beacon of hope and support for families navigating the challenges of rare diseases, offering emotional, informational, and financial assistance.
Dedicated to improving the lives of children with rare conditions, the association facilitates family retreats, workshops, and social events, aiming to raise awareness and fund research for better treatments. Currently, they are fundraising for the development of gene therapy for Cockayne syndrome – type B, partnering with scientists in the USA and Portugal. Join their noble cause by contributing to provide these exceptional children and their families with the opportunity to thrive
Brand industry
Business and Consumer Services
Company type
Nonprofit
Year founded
2018
Company size
2-10 employees
