Was ist PKU

Was ist PKU? is an informational brand focused on helping people understand and live with phenylketonuria (PKU), a hereditary metabolic condition. Its central message is that PKU is more than a diagnosis: it encompasses the experiences of children, adults, families, healthcare professionals, researchers and a wider community. The site explains how PKU affects the body and why managing phenylalanine levels through ongoing dietary care is important, while encouraging people to seek individual medical advice from their healthcare team.

The brand offers practical information for different life stages, covering topics such as nutrition, blood-level monitoring, treatment, school and everyday life, adulthood, pregnancy and travel. Resources include a free downloadable PKU infographic, a brochure about living with PKU, frequently asked questions, and information to help people find specialist PKU centres. It also points visitors to the @wasistpku Instagram channel, which shares personal experiences, community perspectives, nutrition information and everyday tips. Overall, Was ist PKU? aims to support informed, self-directed living and make reliable guidance and peer perspectives easier to access.