Asociación Síndrome X Frágil Madrid

The Fragile X Syndrome Association of Madrid is an organization dedicated to improving the quality of life of people with Fragile X syndrome and their families. Fragile X syndrome is a hereditary neurodevelopmental condition linked to the X chromosome and a leading genetic cause of intellectual disability. Its effects can vary, ranging from learning difficulties to intellectual disability.

The association provides information and guidance, welcomes and supports families, and offers assistance throughout different stages of life. It also works to share current knowledge about the syndrome and promote research. Its services include training and programs such as IncluXión and XFit, alongside opportunities for families to connect and participate in activities. Through these efforts, the organization aims to increase understanding of Fragile X syndrome and help affected people and their families access support.

Based in Madrid, the association also publishes educational materials, news and information about the condition, its diagnosis, characteristics, inheritance and development. People can support its work by collaborating with the organization.