Kerri

Bridgetitis is a personal family blog chronicling life with Bridget, who has the rare genetic syndrome PACS1. Through candid stories, photographs, and reflections, her mother shares the family’s unexpected journey, including the realities of medical appointments, therapies, caregiving, and planning for Bridget’s future. The writing balances difficult questions and honest accounts of uncertainty with humor, gratitude, and affection for Bridget and the people who support the family.

Posts explore how PACS1 shapes daily life, education, independence, and family relationships, while affirming that parents can love their child and still wonder how life might have been different. The site also offers information and resources for readers seeking support or learning more about PACS1, including a dedicated research page. Features such as the My Challenge Series and “You are not alone” highlight shared experiences and connection among families.

Bridgetitis is a personal storytelling and awareness resource rather than a commercial product or service provider, inviting readers to follow the family’s experiences and find understanding in the challenges and joys of raising a child with a rare condition